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CareCast: The CLL Society Podcast: Daily Summaries Delivered
by CLL Society
Being told you have chronic lymphocytic leukemia (CLL) can come with feelings of worry, sadness, confusion, and perhaps most of all, uncertainty. From diagnosis, to watch and wait, starting treatment, reaching long-term stability and survivorship, to potential relapse and starting over again, the journey can get complicated, and everyone's experience is unique. CLL Society is here to partner with you, and together we can tackle the hard moments and turn them into positive action and hope. CareCast, the CLL Society podcast, explores living with CLL through real-life stories. We will speak with patients, care partners, and loved ones to get an array of perspectives on the impact CLL / SLL has from those closest to it. We invite you to join us - we are all in this together. CLL Society is an inclusive, patient-centric, physician-curated nonprofit organization that addresses the unmet needs of the chronic lymphocytic leukemia and small lymphocytic lymphoma (CLL / SLL) community through patient education, advocacy, support, and research. Learn more and find support at: https://cllsociety.org/
Latest Episodes
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- Nov 18, 202547 min
Anchored in Knowledge: Navigating CLL at Sea
In this episode of the CLL Society Carecast, we're joined by Ed McNichol — whose career as a deep-sea imaging specialist often takes him out to sea for extended periods. Ed shares his story of navigating life's unpredictable tides — balancing the demanding realities of his profession with the challenges of a CLL diagnosis. While frequently away from home, Ed found stability and empowerment through shared decision-making with his healthcare team and by connecting with CLL Society's support groups, which he fondly describes as a "knowledge sharing community." His journey is one of resilience, adaptability, and the power of staying informed and connected, even when life takes you far from familiar shores. Tune in to hear how Ed continues to chart his course with purpose, community, and hope.
- Oct 16, 20251h 5m
The Power of Community in CLL
In this heartfelt episode, we're joined by Yvonne and her daughter, Noni, who open up about how a CLL diagnosis reshaped their family dynamic and strengthened their connection. Together, they share what it's been like to navigate shifting relationships with friends and loved ones while learning to adjust to life's new realities. Through the camaraderie and understanding found in support groups, Yvonne found a sense of belonging—and Noni witnessed firsthand the power of community. Inspired by her mother's resilience and the compassion of others, Noni chose to pursue a career in social work, hoping to support those affected by cancer just as her family was supported. Their story is a touching reminder that even in the face of illness, love, purpose, and shared strength can guide the way forward.
- Sep 25, 202543 min
Turning Diagnosis into Strength: A Firefighter's Journey with CLL
In this episode, we're joined by Henry Olvera, a former firefighter whose life took an unexpected turn after being diagnosed with chronic lymphocytic leukemia (CLL). Throughout his career, he relied on information to save lives, and that same mindset became essential when facing his own diagnosis. Determined not to let CLL define him, he quickly learned the importance of self-advocacy. He shares how he confronted systemic barriers, researched his options, and pushed to receive the right tests and care. For him, information wasn't just power—it was survival. Listeners will hear how his firefighting instincts inspired a holistic approach to navigating the physical, emotional, and systemic challenges of living with CLL. His story is one of resilience, empowerment, and courage, offering a reminder that with knowledge and persistence, patients can shape their own path forward.
- Aug 21, 202545 min
More Than a Diagnosis: Living Fully With CLL
In this episode, we dive into the powerful journey of Lexii Freitas, a young adult and mother facing CLL. Lexii shares with our moderator and CLL Society staff member, Sarah Castro, the raw reality of receiving a lifechanging diagnosis and how she has learned to navigate it with both courage and determination. She shares her experience with the isolation that can come when friends can't fully relate, and the conscious choice to not let CLL define her identity. Through resilience, self-advocacy, and taking necessary precautions, she's found ways to protect her health while continuing to live fully. Her story highlights the importance of pushing for the right tests, understanding your options, and embracing life's moments despite uncertainty. Lexii's story is a testament to strength, hope, and the power of owning your narrative. Whether you're living with CLL, supporting someone who is, or seeking inspiration, her journey will leave you feeling empowered.
- Jul 25, 202552 min
Balancing Life, Fitness, and CLL: A Smart Patient's Story
In this inspiring episode of CareCast, lifelong athlete Ashley Montulli joins CLL Society's Development Director—and fellow CLL patient—Ron Katz for a powerful conversation on navigating life with CLL while balancing motherhood, fitness, and wellness. Ashley shares how staying active and making smart adjustments to her routine have helped her cope with lifestyle changes brought on by her diagnosis. Together, they dive into the importance of having the right information and advocating for yourself as a patient—because Smart Patients Get Smart Care. Don't miss this motivating look at strength, resilience, and self-empowerment.
- Jun 23, 202539 min
Finding Hope Beyond Your Diagnosis
In the first episode of the second season of CareCast: The CLL Society Podcast, our moderator, Doreen Zetterlund, is joined by Rabbi Rebecca Kamil—a chaplain with over 10 years of experience—to discuss the emotional and spiritual challenges faced by CLL/SLL patients throughout their journey. During the conversation, Rabbi Kamil reflects on her own experiences supporting those affected by CLL/SLL.
- Dec 17, 202430 min
Lifestyle, Mindset, and Community: A Holistic Approach to CLL
In this discussion with CLL patient Peter Titlebaum, we explore the connection between lifestyle choices and non-medical approaches to managing chronic lymphocytic leukemia (CLL), with a particular focus on their impact on mental health. Peter is a lifelong athlete, college professor at the University of Dayton, an active member of a CLL Society Support Group, and has been living with CLL since 2018. Peter reflects on his personal experience, highlighting how physical activity has positively influenced his mental health. He also shares how cultivating the right mindset and building a sense of community have been integral to his emotional well-being throughout his journey with CLL.
- Nov 19, 202426 min
Supporting Loved Ones Through CLL: A Care Partner's Journey
Approximately 53 million Americans serve as care partners to a loved one, with about 6 million of them providing care to individuals diagnosed with cancer. Susan Bottega is one of these dedicated care partners, supporting her husband since his diagnosis of chronic lymphocytic leukemia (CLL) in 2010. She reflects on the emotional impact of the initial diagnosis, the importance of becoming well-informed about CLL as a care partner, and how advocating for her husband has shaped their journey with the disease. Susan also touches on the vital role of mental health and having a strong support system, highlighting her involvement in a CLL Society Support Group where she has both given and received invaluable advice from others navigating similar challenges.
About CareCast: The CLL Society Podcast
Being told you have chronic lymphocytic leukemia (CLL) can come with feelings of worry, sadness, confusion, and perhaps most of all, uncertainty. From diagnosis, to watch and wait, starting treatment, reaching long-term stability and survivorship, to potential relapse and starting over again, the journey can get complicated, and everyone's experience is unique. CLL Society is here to partner with you, and together we can tackle the hard moments and turn them into positive action and hope. CareCast, the CLL Society podcast, explores living with CLL through real-life stories. We will speak with patients, care partners, and loved ones to get an array of perspectives on the impact CLL / SLL has from those closest to it. We invite you to join us - we are all in this together. CLL Society is an inclusive, patient-centric, physician-curated nonprofit organization that addresses the unmet needs of the chronic lymphocytic leukemia and small lymphocytic lymphoma (CLL / SLL) community through patient education, advocacy, support, and research. Learn more and find support at: https://cllsociety.org/
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