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The Muscular Dystrophy UK: Muscles Matter Podcast: Daily Summaries Delivered
by Muscular Dystrophy UK
A podcast for people living with a muscle wasting and weakening condition, their family and carers. Themes span from health and wellbeing, the latest research, tips and advice on day to day living with a muscle wasting condition, and inspirational community stories.
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- 1 weeks ago28 min
Episode 15 - A mother’s story of joy and grief around her son who lived with Duchenne muscular dystrophy
In our latest Muscles Matter podcast, we dive into a personal story to look at a mother and son relationship, a son who lived with Duchenne muscular dystrophy, their life together, and dealing with grief and loss. Alex is the mother and our guest, and she shares the story of the special times she had with her son Declan, the everyday joy they found in each other’s company, and the magical mystery road trips they took together. Along with how she processed the loss of Declan, her motiva...
- Apr 29, 202636 min
Episode 14 – Parenting with a muscle wasting condition
In this Muscles Matter episode, we explore the joys and challenges that come with parenting while living with a muscle wasting condition. Along with the adaptations and support that our guests have found has helped them the most in doing this. Joining the podcast are Tahira, mum to two sons under five, and Joe, father to a teenager daughter – both guests live with a muscle wasting condition. The podcast is hosted by Kerry Spinks, Muscular Dystrophy Trust Fundraising Manager, and mum to twin...
- Mar 25, 202629 min
Episode 13 – Healthcare challenges and barriers for women living with a muscle wasting condition
Our latest Muscles Matter podcast looks at the healthcare challenges and barriers that women living with a muscle wasting condition face, including misconceptions and insufficient understanding and knowledge. We look at how this affects both the mental and physical wellbeing of women, and what could be different. Taking part in this discussion, drawing on their own professional and personal experiences, are Mia Myers, who is undertaking a PhD in accessibility and women’s healthcare, and...
- Feb 25, 202632 min
Episode 12 - Barriers to attending concerts, sporting and theatre events
In our latest podcast episode our guests Charley and Jack, along with our host Martin, discuss the challenges faced by people living with a muscle wasting condition when attending concerts/sports/theatre and other such events. Challenges that can often start at the point of buying a ticket and then on to physically accessing venues. They also share their own positive experiences along with things that have changed for the better in recent years, and what could be really make a difference goin...
- Jan 27, 202619 min
Episode 11 – Winter challenges, and coping mechanisms, when living with a muscle wasting condition
In our latest Muscles Matter podcast, we look at the impact winter has on the lives of people living with a muscle wasting condition. The challenges faced, ways to navigate through these challenges with things like hobbies and connections, along with advice for those, in particular, who find winter tough. We’re joined by two great guests Morvenna and Aaron, who both live with a muscle wasting condition, and share their own experiences. The podcast is hosted by Martin Hywood, Muscular Dy...
- Dec 18, 202532 min
Episode 10 – Discussing the latest developments in research and treatments for people living with a muscle wasting condition
In this Muscles Matter podcast, we discuss exciting developments in research and treatments for people living with muscle wasting conditions, what needs to be done to move these developments forwards and how these developments might affect treatments for people living with a condition more widely. Along with what surprising ideas could change the area of research and treatments in the future. We’re excited to have worked in collaboration with the MAGIC consortium project, in which we’re...
- Nov 25, 202529 min
Episode 9 – Exploring helpline and support services for people living with a muscle wasting condition
In this episode of our Muscles Matter podcast, we discuss people’s experiences of helpline support and the other services this might lead to —what people have found the most useful, how it has helped them navigate difficult times, and what types of support more generally are available for people living with a muscle wasting condition and for their wider support network. We’re joined by two great guests, Bernard and Zoe, who both live with a muscle wasting condition. The podcast is hoste...
- Oct 28, 202526 min
Episode 8 – Sharing experiences of several family members with the same muscle wasting condition
In this Muscles Matter podcast episode, we look at what it’s like to have several members of the same family living with a muscle wasting condition. How this affects the different relationships, different levels of progression, and the support shared with one another. Sisters Cadi and Cerys, living with limb girdle muscular dystrophy, and mum Leanne, living with FSHD as does both her daughters, share their experiences of the above topic with our host Rebecca Torricelli, Muscular Dystrophy UK’...
About The Muscular Dystrophy UK: Muscles Matter Podcast
A podcast for people living with a muscle wasting and weakening condition, their family and carers. Themes span from health and wellbeing, the latest research, tips and advice on day to day living with a muscle wasting condition, and inspirational community stories.
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