
Why the MIND Study Matters: Building Clinical Trial Readiness for MED13L In this powerful and informative episode of Voices of MED13L, Vanessa sits down with Abigail Sveden, MS, CGC, a genetic counselor at the Boston Children's Hospital and member of the Rosamund Stone Zander Translational Neuroscience Center (TNC). Together, they unpack the critical importance of the MIND Study — MED13L Syndrome Investigation of Natural History and Development — and what it means for families today and for t...
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Sibling Takeover: Tenley on Growing Up with Addie

Growing Up With MED13L: Life at 18

MED13L Research Update: Where We Are and Where We’re Headed.

May is MED13L Awareness Month
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