Beyond Accessibility: Building Neuroinclusive Association Communities

In this episode of Associations NOW Presents, guest host Catherine Galli, MPH, digital content writer at the International Coaching Federation, sits down with Wendy-Jo Toyama, MBA, FASAE, CAE, chief executive officer of the American Epilepsy Society, and Megan Henshall, chief impact officer of The Neu Project, to explore findings from the ASAE Foundation and MPI Foundation report, “Enhancing Neuroinclusive Practices in Association.” The conversation examines how associations can create more inclusive environments for neurodivergent staff, members, and event attendees by moving beyond accessibility checklists toward intentional belonging. Toyama and Henshall discuss persistent stigma surrounding neurodivergence, gaps in awareness and implementation across organizations, and the importance of making neuroinclusive efforts visible and actionable. They also share practical strategies such as quiet and resilient spaces at events, inclusive facilitation techniques, clearer accommodation pathways, and ongoing feedback mechanisms, while emphasizing curiosity, co-creation, and intersectionality as essential components of meaningful neuroinclusion. A special thanks to the sponsors and supporters of this important report: Choose Chicago Visit Kansas City MGM Resorts International Discover Puerto Rico Myrtle Beach Convention Center  MPI Foundation   Check out the video podcast here: https://youtu.be/l9p_s7Bz6QU Associations NOW Presents is produced by Association Briefings.   Transcript Catherine Galli: [00:00:00] Welcome to this month's episode of Associations NOW Presents, an original podcast series from the American Society of Association Executives. I'm Catherine Galli, digital content writer at the International Coaching Federation. Today, we're excited to welcome Wendy-Jo Toyama, CEO of the American Epilepsy Society, and Megan Henshall, chief impact officer at The Neu Project. Welcome, Wendy-Jo and Megan. Today, we're discussing the joint report through the ASAE Foundation and MPI Foundation, “Enhancing Neuroinclusive Practices in Association,” of course, which was done in partnership with Ferguson and The Neu Project. For those who may be new to the term, let's just dive right in. How do you define neuroinclusion, and why is it especially relevant for associations right now?  Megan Henshall: I can jump in first, and then I would actually love to hear your answer, too. So at The Neu Project, we define neurodiversity as all of us, right? We all have a [00:01:00] brain. Some brains are, quote, unquote, "neurotypical," some brains are neurodivergent, but there are billions of neurotypes and combinations of different ways of thinking and cognitive function. And so neurodiversity really speaks to, to all of us, and I think we're gonna dig into sort of the neurodivergent experience in this conversation today. But it really is important to note that it is speaking to brain health across everyone and how we support people with cognitive functioning, sensory processing, regardless of their neurotype  Wendy-Jo Toyama: Yeah, and then taking it to the next step, neuroinclusion then would be creating that sense of belonging so that everyone can feel seen and heard. So creating an environment that really embraces that neurological difference. And I think it's particularly important because, as Meg said, it cuts across all aspects of associations, and so we have members who are [00:02:00] affected by practices that are either barriers or neuroinclusive. We have staff. So it's really important to build this to be able to be effective and welcoming and create a sense of belonging for everyone. Catherine Galli: Thank you. That's a great explanation, and I think it really centers everybody into the topic today. So in the association industry, this report on neuroinclusion is a first. What are some of the most surprising or unexpected findings that emerged from the data?  Wendy-Jo Toyama: I will just start by saying I think associations have a long way to go on being a welcoming environment around disabilities in general. And so I think what surprised me is that there are some things that are going well or strengths we can build on. Like, I think it was not as bleak as I thought it was maybe going to be. For me, there are places where things are happening that we can build on. So that was one surprise to me.  Megan Henshall: One of the things that jumped out to me when we did the individual interviews, and we [00:03:00] interviewed samples across the entire association population, but in a, a particular interview with a senior leader, so executive, there was a comment made of, "I don't think this affects my particular organization. Everyone in my organization is very high-functioning." And so it's not-  <p